000			01982nam a22002657a 4500
003			OSt
005			20240720130651.0
008			191103b xxu||||| |||| 00| 0 eng d
020			_a9789004311893
040			_beng
082			_a599.935 _bD825
100			_aDreyer, Malte
100			_aJeanette Erdmann
100			_aChristoph Rehmann-Sutter
245			_aGenetic transparency? ethical and social implications of next generation human genomics and genetic medicine (electronic resource)
260			_aLeiden _bBrill _c2016
300			_a292 p.
440			_aLife Sciences, Ethics and Democracy _vVol. 2
500			_aGenetic Transparency? tackles the question of who has, or should have access to personal genomic information. Genomic science is revolutionary in how it changes the way we live, individually and together, and how it changes the shape of society. If this is so, then – the authors of this volume claim – the rules that regulate genetic transparency should be debated carefully, openly and critically. It is important to see that the social and cultural meanings of DNA and genetic sequences are much richer than can be accounted for by purely biomedical knowledge. In this book, an international group of leading genomics experts and scholars from the humanities and social sciences discuss how the new accessibility of genomic information affects interpersonal relationships, our self-understandings, ethics, law, and healthcare systems. Contributors are: Kirsten Brukamp, Gabrielle Christenhusz, Lorraine Cowley, Malte Dreyer, Jeanette Erdmann, Andrei Famenka, Teresa Finlay, Caroline Fündling, Shannon Gibson, Cathy Herbrand, Angeliki Kerasidou, Lene Koch, Fruzsina Molnár-Gábor, Tim Ohnhäuser, Christoph Rehmann-Sutter, Benedikt Reiz, Vasilja Rolfes, Sara Tocchetti
650			_aMedical genetic
650			_aGenomics
650			_aMoral and ethical aspects
856			_uhttps://brill.com/view/title/32481
942			_2ddc _cEBK
999			_c31433 _d31433